The Phone Battery Theory

How do you explain what it is like to have Narcolepsy? This is a regular topic of conversation within social media narcolepsy forums; and one that never really seems to be answered. The fact is that it is almost impossible for anyone who doesn’t have it to be able to understand the battle. I haveContinue reading “The Phone Battery Theory”

The Arrival of the Red Herring

During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with beingContinue reading “The Arrival of the Red Herring”

Increasingly Forgetful

When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have troubleContinue reading “Increasingly Forgetful”

Raising Awareness Interview

On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects thatContinue reading “Raising Awareness Interview”

What I have done to help raise awareness

World Narcolepsy Day – Dreaming about a Bright Future is what I wrote on my project_sleep cloud. As you know, I started this blog in an effort to help raise awareness for World Narcolepsy Day. I have also written a song and hope to have this available on here for you all to listen toContinue reading “What I have done to help raise awareness”

Raising Awareness

Today I will be joining “The Kitchen Table” at 1.30pm (SA time) to discuss narcolepsy to help to raise awareness of this chronic neurological condition. Tune in to PBAFM 89.7 FM to hear the interview. #WorldNarcolepsyDay #ProjectSleep #NODS #NarcolepsyAustralia

World Narcolepsy Day

September 22nd is the second World Narcolepsy Day. Last year Narcolepsy Australia organised “Meet Up’s” around the country, but unfortunately due to the C-19 Pandemic this will not be happening this year. The American non-profit organization Project Sleep co leads an awareness campaign with a series of online activities, story sharing events and training sessionsContinue reading “World Narcolepsy Day”