World Narcolepsy Day 2021

World Narcolepsy Day is only 11 days away, September 22nd. Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinue reading “World Narcolepsy Day 2021”

Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but itContinue reading “Don’t Give Up”

The Arrival of the Red Herring

During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with beingContinue reading “The Arrival of the Red Herring”

Increasingly Forgetful

When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have troubleContinue reading “Increasingly Forgetful”

Raising Awareness Interview

On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects thatContinue reading “Raising Awareness Interview”

What I have done to help raise awareness

World Narcolepsy Day – Dreaming about a Bright Future is what I wrote on my project_sleep cloud. As you know, I started this blog in an effort to help raise awareness for World Narcolepsy Day. I have also written a song and hope to have this available on here for you all to listen toContinue reading “What I have done to help raise awareness”

Raising Awareness

<p id="RaisingAwareness" value="<amp-fit-text layout="fixed-height" min-font-size="6" max-font-size="72" height="80">Today I will be joining "<a href="https://www.pbafm.org.au/shows/the-kitchen-table/">The Kitchen Table</a>" at 1.30pm (SA time) to discuss narcolepsy to help to raise awareness of this chronic neurological condition. Tune in to <a href="https://radioau.net/pba-fm/">PBAFM</a&gt; 89.7 FM to hear the interview.Today I will be joining “The Kitchen Table” at 1.30pm (SA time) toContinue reading “Raising Awareness”

World Narcolepsy Day

September 22nd is the second World Narcolepsy Day. Last year Narcolepsy Australia organised “Meet Up’s” around the country, but unfortunately due to the C-19 Pandemic this will not be happening this year. The American non-profit organization Project Sleep co leads an awareness campaign with a series of online activities, story sharing events and training sessionsContinue reading “World Narcolepsy Day”