Every year I think of different ideas for raising narcolepsy awareness for World Narcolepsy Day, September 22nd. In previous awareness campaigns, I’ve shared community responses from the Living With Narcolepsy in Australia Facebook group, released a song titled ‘The Underground Railroad’, and launched a limited podcast series: ‘Waking Up Tired – Narcolepsy Symptoms Explained’ aContinueContinue reading “World Narcolepsy Day 2026 – Narcolepsy Is”
Tag Archives: World Narcolepsy Day
Irresistible Urge to Sleep – Excessive Daytime Sleepiness (EDS)
Waking Up Tired – Narcolepsy Symptoms Explained Podcast Episode One One symptom that every person with narcolepsy experiences is Excessive Daytime Sleepiness, or EDS. It’s not just feeling tired — it’s a persistent, overwhelming sleepiness that doesn’t go away, no matter how much rest you’ve had. EDS is often the first symptom to appear, butContinueContinue reading “Irresistible Urge to Sleep – Excessive Daytime Sleepiness (EDS)”
What I have done to help raise awareness
World Narcolepsy Day – Dreaming about a Bright Future is what I wrote on my project_sleep cloud. As you know, I started this blog in an effort to help raise awareness for World Narcolepsy Day. I have also written a song ( released on the 22nd of September, 2022) about Harriet Tubman, an American abolitionistContinueContinue reading “What I have done to help raise awareness”