World Narcolepsy Day: Focusing on Support This year, for World Narcolepsy Day, I want to highlight the available support for those living with narcolepsy in Australia, rather than dwell on the challenges we face. For individuals with narcolepsy, joining an online support group can be incredibly beneficial. It creates a space where you can openlyContinueContinue reading “World Narcolepsy Day 2024”
Category Archives: World Narcolepsy Day
World Nacolepsy Day
Just a quick post to let everyone know that today I am celebrating World Narcolepsy Day by sharing stories from people who are Living With Narcolepsy, to Raise Narcolepsy Awareness. If you would like to watch the videos please go to my Waking Up Tired Facebook page where you will also be able to shareContinueContinue reading “World Nacolepsy Day”
LIVING WITH NARCOLEPSY IN AUSTRALIA
I have been very busy putting together slideshows to Raise Narcolepsy Awareness for this years World Narcolepsy Day. The slideshows are a brief snippet about what it is like to be Living With Narcolepsy in Australia. I invited people who Live With Narcolepsy to answer a few questions, and have put their responses into slideshowContinueContinue reading “LIVING WITH NARCOLEPSY IN AUSTRALIA”
Sharing Our Stories To Raise Awareness
Being diagnosed at the age of 49 to me meant that I had already lost the majority of my life and therefore I was determined to find the best possible way to get through my remaining years as a person who is ‘Living with Narcolepsy’ the best way that I possibly can.
Central Disorders of Hypersomnolence (CDH) Consumer Forum.
I am proud to announce that I was recently invited by Michelle Chadwick from Hypersomnolence Australia to become a member of the CDH Consumer Forum. I now have the opportunity to connect with consumers and other consumer advocates, to collaborate on initiatives that will benefit others within the Australian Narcolepsy communities. Health consumers have beenContinueContinue reading “Central Disorders of Hypersomnolence (CDH) Consumer Forum.”
The Underground Railroad
The Underground Railroad was released on World Narcolepsy Day, September 22, 2022 to help to raise narcolepsy awareness. My song is available to stream on all major streaming platforms including Spotify, YouTube, YouTube Music, Amazon Music, and Deezer and to purchase on bandcamp, iTunes, and Apple Music. To watch my lyric video for ‘The UndergroundContinueContinue reading “The Underground Railroad“
The Underground Railroad
Please help me to raise awareness on World Narcolepsy Day, September 22nd, by streaming this song on your preferred streaming service, and or purchase this single, request it to be played on the radio.
Today is World Narcolepsy Day
The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinueContinue reading “Today is World Narcolepsy Day”
World Narcolepsy Day 2021
World Narcolepsy Day is only 11 days away, on September 22nd.Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinueContinue reading “World Narcolepsy Day 2021”
Raising Awareness Interview
On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects thatContinueContinue reading “Raising Awareness Interview”
What I have done to help raise awareness
World Narcolepsy Day – Dreaming about a Bright Future is what I wrote on my project_sleep cloud. As you know, I started this blog in an effort to help raise awareness for World Narcolepsy Day. I have also written a song ( released on the 22nd of September, 2022) about Harriet Tubman, an American abolitionistContinueContinue reading “What I have done to help raise awareness”
Raising Awareness
<p id="RaisingAwareness" value="<amp-fit-text layout="fixed-height" min-font-size="6" max-font-size="72" height="80">Today I will be joining "<a href="https://www.pbafm.org.au/shows/the-kitchen-table/">The Kitchen Table</a>" at 1.30pm (SA time) to discuss narcolepsy to help to raise awareness of this chronic neurological condition. Tune in to <a href="https://radioau.net/pba-fm/">PBAFM</a> 89.7 FM to hear the interview.Today I will be joining “The Kitchen Table” at 1.30pm (SA time) toContinueContinue reading “Raising Awareness”
World Narcolepsy Day
September 22nd is the second World Narcolepsy Day. Last year Narcolepsy Australia organised “Meet Up’s” around the country, but unfortunately due to the C-19 Pandemic this will not be happening this year. The American non-profit organization Project Sleep co leads an awareness campaign with a series of online activities, story sharing events and training sessionsContinueContinue reading “World Narcolepsy Day”
