The final episode of the Waking Up Tired – Narcolepsy Symptoms Explained podcast features Dr David Cunnington, a specialist sleep physician and educator, who’s spent over two decades listening to patients and helping decode the complexities of sleep disorders. David shares what narcolepsy looks like from the other side of the desk, why diagnosis takesContinueContinue reading “Why Narcolepsy Takes Time to Diagnose: Dr David Cunnington Explains Narcolepsy in Clinical Practice”
Tag Archives: sleep disorders
Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy
“I was awake, but I couldn’t move. I could hear someone say my name—but no one was there.” https://open.spotify.com/episode/2578xNvXmyYjuiu0SdEQfH?si=7Cf34uo9TZW3R9t87O3WFg That was Erin’s first experience of sleep paralysis. She was 16, confused, and terrified. What she didn’t know then was that this moment would mark the beginning of her journey toward a diagnosis of Type 1ContinueContinue reading “Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy”
Disrupted Sleep, Disrupted Life – Disrupted Night-time Sleep
Waking Up Tired – Narcolepsy Symptoms Explained Podcast Episode Four When I was first diagnosed with narcolepsy, I wasn’t handed a guidebook. No roadmap, no real explanation—just a steep learning curve I’m still navigating. That’s why conversations like the one in Episode 4 of Waking Up Tired matter so deeply. In this episode, you willContinueContinue reading “Disrupted Sleep, Disrupted Life – Disrupted Night-time Sleep”
Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality
Description:In this deeply personal episode, Alicia shares navigating the blurred lines between dreams and reality—where vivid, realistic dreams can reopen trauma, strain relationships, and leave lasting confusion. Diagnosed with narcolepsy at 26 after years of misdiagnosis and dismissal, Alicia shares how the condition affects memory, emotional processing, and daily life. From dreaming about being lateContinueContinue reading “Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality”
Waking Up Tired Podcast – Narcolepsy Symptoms Explained
Waking Up Tired, the podcast that explores narcolepsy through the lens of lived experience
World Sleep Day: Make Sleep Health a Priority
World Sleep Day: March 14, 2025 Friday, March 14 is World Sleep Day, and in recognition of this event, members of the Living With Narcolepsy in Australia Facebook Group participated in this awareness opportunity by answering five questions based on the theme “Make Sleep Health a Priority.” World Sleep Society is a nonprofit, professional membershipContinueContinue reading “World Sleep Day: Make Sleep Health a Priority”
World Narcolepsy Day 2024
World Narcolepsy Day: Focusing on Support This year, for World Narcolepsy Day, I want to highlight the available support for those living with narcolepsy in Australia, rather than dwell on the challenges we face. For individuals with narcolepsy, joining an online support group can be incredibly beneficial. It creates a space where you can openlyContinueContinue reading “World Narcolepsy Day 2024”
WORLD SLEEP DAY 2024
World Sleep Day, March 15, 2024, Sleep Equity for Global Health.
WORLD SLEEP DAY
‘Sleep Equity for Global Health’ is this year’s World Sleep Day theme.
As a World Sleep Day delegate this year, I will be sharing some slides that I have created, using the responses to my questions that I asked members of the Living With Narcolepsy in Australia Facebook Group.
We aim to raise awareness of the importance of sleep for physical and mental health, as well as the challenges faced by people who live with narcolepsy in Australia.
Please help us to raise awareness for World Sleep Day, March 15th, 2024.
World Nacolepsy Day
Just a quick post to let everyone know that today I am celebrating World Narcolepsy Day by sharing stories from people who are Living With Narcolepsy, to Raise Narcolepsy Awareness. If you would like to watch the videos please go to my Waking Up Tired Facebook page where you will also be able to shareContinueContinue reading “World Nacolepsy Day”
Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication
Guest Speaker: Gina Dennis, CHCTopic: Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication. At this month’s Living With Narcolepsy Catch-Up I invited Madcap Gina, aka Gina Dennis from Madcap Narcolepsy to be our guest speaker. Gina discussed how to mitigate narcolepsy and idiopathic hypersomnia symptoms by using diet and lifestyle changes and techniques. Gina’s specialty isContinueContinue reading “Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication”
LIVING WITH NARCOLEPSY IN AUSTRALIA
I have been very busy putting together slideshows to Raise Narcolepsy Awareness for this years World Narcolepsy Day. The slideshows are a brief snippet about what it is like to be Living With Narcolepsy in Australia. I invited people who Live With Narcolepsy to answer a few questions, and have put their responses into slideshowContinueContinue reading “LIVING WITH NARCOLEPSY IN AUSTRALIA”
Sharing Our Stories To Raise Awareness
Being diagnosed at the age of 49 to me meant that I had already lost the majority of my life and therefore I was determined to find the best possible way to get through my remaining years as a person who is ‘Living with Narcolepsy’ the best way that I possibly can.
Central Disorders of Hypersomnolence (CDH) Consumer Forum.
I am proud to announce that I was recently invited by Michelle Chadwick from Hypersomnolence Australia to become a member of the CDH Consumer Forum. I now have the opportunity to connect with consumers and other consumer advocates, to collaborate on initiatives that will benefit others within the Australian Narcolepsy communities. Health consumers have beenContinueContinue reading “Central Disorders of Hypersomnolence (CDH) Consumer Forum.”
The Underground Railroad
The Underground Railroad was released on World Narcolepsy Day, September 22, 2022 to help to raise narcolepsy awareness. My song is available to stream on all major streaming platforms including Spotify, YouTube, YouTube Music, Amazon Music, and Deezer and to purchase on bandcamp, iTunes, and Apple Music. To watch my lyric video for ‘The UndergroundContinueContinue reading “The Underground Railroad“
Today is World Narcolepsy Day
The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinueContinue reading “Today is World Narcolepsy Day”
World Narcolepsy Day 2021
World Narcolepsy Day is only 11 days away, on September 22nd.Narcolepsy is a Rare Disease that affects 1 in 2,000 In the US or 3 million worldwide! It is a neurological disorder that affects the brain’s ability to control the sleep AND wake cycles, and there is no cure. Excessive Daytime Sleepiness is the mostContinueContinue reading “World Narcolepsy Day 2021”
Raising Awareness Interview
On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects thatContinueContinue reading “Raising Awareness Interview”
Raising Awareness
<p id="RaisingAwareness" value="<amp-fit-text layout="fixed-height" min-font-size="6" max-font-size="72" height="80">Today I will be joining "<a href="https://www.pbafm.org.au/shows/the-kitchen-table/">The Kitchen Table</a>" at 1.30pm (SA time) to discuss narcolepsy to help to raise awareness of this chronic neurological condition. Tune in to <a href="https://radioau.net/pba-fm/">PBAFM</a> 89.7 FM to hear the interview.Today I will be joining “The Kitchen Table” at 1.30pm (SA time) toContinueContinue reading “Raising Awareness”
The Shadow People
Hallucinations: The Shadow People I never mentioned my hallucinations due to being afraid that I would be labeled crazy and then put away. I see, hear, and smell things that aren’t really there when I’m pushing myself to keep going. I believe that my narcolepsy symptoms began to show when I was approximately 10 yearsContinueContinue reading “The Shadow People”
