The final episode of the Waking Up Tired – Narcolepsy Symptoms Explained podcast features Dr David Cunnington, a specialist sleep physician and educator, who’s spent over two decades listening to patients and helping decode the complexities of sleep disorders. David shares what narcolepsy looks like from the other side of the desk, why diagnosis takesContinueContinue reading “Why Narcolepsy Takes Time to Diagnose: Dr David Cunnington Explains Narcolepsy in Clinical Practice”
Category Archives: raising awareness
The Shadow Man and Me Terrifying Narcolepsy Hallucinations
Waking Up Tired Narcolepsy Symptoms Explained Podcast In episode six of the Waking Up Tired – Narcolepsy Symptoms Explained podcast, host Di Spillane introduces us to Laura. When Laura first started seeing the Shadow Man — a dark, looming figure who hovered near her bed she thought she was losing her mind. The hallucinations wereContinueContinue reading “The Shadow Man and Me Terrifying Narcolepsy Hallucinations”
Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy
“I was awake, but I couldn’t move. I could hear someone say my name—but no one was there.” https://open.spotify.com/episode/2578xNvXmyYjuiu0SdEQfH?si=7Cf34uo9TZW3R9t87O3WFg That was Erin’s first experience of sleep paralysis. She was 16, confused, and terrified. What she didn’t know then was that this moment would mark the beginning of her journey toward a diagnosis of Type 1ContinueContinue reading “Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy”
Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality
Description:In this deeply personal episode, Alicia shares navigating the blurred lines between dreams and reality—where vivid, realistic dreams can reopen trauma, strain relationships, and leave lasting confusion. Diagnosed with narcolepsy at 26 after years of misdiagnosis and dismissal, Alicia shares how the condition affects memory, emotional processing, and daily life. From dreaming about being lateContinueContinue reading “Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality”
Sleep Attacks: The Sneaky Side of Narcolepsy
Waking Up Tired: Narcolepsy Symptoms Explained Episode Two https://open.spotify.com/episode/1gEPacI6EevfId40oAVcHM?si=plzy4W7JRpysNK5xMjlg-w A sleep attack or micro sleep doesn’t come upon a person with narcolepsy with no warning. They will already be feeling quite sleepy. Unless they realise they are drifting off, they will fall briefly into a micro sleep. In this episode, Jana, shares her powerful journeyContinueContinue reading “Sleep Attacks: The Sneaky Side of Narcolepsy”
Irresistible Urge to Sleep – Excessive Daytime Sleepiness (EDS)
Waking Up Tired – Narcolepsy Symptoms Explained Podcast Episode One One symptom that every person with narcolepsy experiences is Excessive Daytime Sleepiness, or EDS. It’s not just feeling tired — it’s a persistent, overwhelming sleepiness that doesn’t go away, no matter how much rest you’ve had. EDS is often the first symptom to appear, butContinueContinue reading “Irresistible Urge to Sleep – Excessive Daytime Sleepiness (EDS)”
Waking Up Tired Podcast – Narcolepsy Symptoms Explained
Waking Up Tired, the podcast that explores narcolepsy through the lens of lived experience
World Sleep Day: Make Sleep Health a Priority
World Sleep Day: March 14, 2025 Friday, March 14 is World Sleep Day, and in recognition of this event, members of the Living With Narcolepsy in Australia Facebook Group participated in this awareness opportunity by answering five questions based on the theme “Make Sleep Health a Priority.” World Sleep Society is a nonprofit, professional membershipContinueContinue reading “World Sleep Day: Make Sleep Health a Priority”
World Narcolepsy Day 2024
World Narcolepsy Day: Focusing on Support This year, for World Narcolepsy Day, I want to highlight the available support for those living with narcolepsy in Australia, rather than dwell on the challenges we face. For individuals with narcolepsy, joining an online support group can be incredibly beneficial. It creates a space where you can openlyContinueContinue reading “World Narcolepsy Day 2024”
WORLD SLEEP DAY 2024
World Sleep Day, March 15, 2024, Sleep Equity for Global Health.
World Nacolepsy Day
Just a quick post to let everyone know that today I am celebrating World Narcolepsy Day by sharing stories from people who are Living With Narcolepsy, to Raise Narcolepsy Awareness. If you would like to watch the videos please go to my Waking Up Tired Facebook page where you will also be able to shareContinueContinue reading “World Nacolepsy Day”
Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication
Guest Speaker: Gina Dennis, CHCTopic: Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication. At this month’s Living With Narcolepsy Catch-Up I invited Madcap Gina, aka Gina Dennis from Madcap Narcolepsy to be our guest speaker. Gina discussed how to mitigate narcolepsy and idiopathic hypersomnia symptoms by using diet and lifestyle changes and techniques. Gina’s specialty isContinueContinue reading “Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication”
LIVING WITH NARCOLEPSY IN AUSTRALIA
I have been very busy putting together slideshows to Raise Narcolepsy Awareness for this years World Narcolepsy Day. The slideshows are a brief snippet about what it is like to be Living With Narcolepsy in Australia. I invited people who Live With Narcolepsy to answer a few questions, and have put their responses into slideshowContinueContinue reading “LIVING WITH NARCOLEPSY IN AUSTRALIA”
Sharing Our Stories To Raise Awareness
Being diagnosed at the age of 49 to me meant that I had already lost the majority of my life and therefore I was determined to find the best possible way to get through my remaining years as a person who is ‘Living with Narcolepsy’ the best way that I possibly can.
