Waking Up Tired Narcolepsy Symptoms Explained Podcast In episode six of the Waking Up Tired – Narcolepsy Symptoms Explained podcast, host Di Spillane introduces us to Laura. When Laura first started seeing the Shadow Man — a dark, looming figure who hovered near her bed she thought she was losing her mind. The hallucinations wereContinueContinue reading “The Shadow Man and Me Terrifying Narcolepsy Hallucinations”
Tag Archives: Australian narcolepsy community
Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy
“I was awake, but I couldn’t move. I could hear someone say my name—but no one was there.” https://open.spotify.com/episode/2578xNvXmyYjuiu0SdEQfH?si=7Cf34uo9TZW3R9t87O3WFg That was Erin’s first experience of sleep paralysis. She was 16, confused, and terrified. What she didn’t know then was that this moment would mark the beginning of her journey toward a diagnosis of Type 1ContinueContinue reading “Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy”
Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality
Description:In this deeply personal episode, Alicia shares navigating the blurred lines between dreams and reality—where vivid, realistic dreams can reopen trauma, strain relationships, and leave lasting confusion. Diagnosed with narcolepsy at 26 after years of misdiagnosis and dismissal, Alicia shares how the condition affects memory, emotional processing, and daily life. From dreaming about being lateContinueContinue reading “Vivid Dreams. Was That Real? Narcolepsy, Memory, and the Blur Between Sleep and Reality”
WORLD SLEEP DAY
‘Sleep Equity for Global Health’ is this year’s World Sleep Day theme.
As a World Sleep Day delegate this year, I will be sharing some slides that I have created, using the responses to my questions that I asked members of the Living With Narcolepsy in Australia Facebook Group.
We aim to raise awareness of the importance of sleep for physical and mental health, as well as the challenges faced by people who live with narcolepsy in Australia.
Please help us to raise awareness for World Sleep Day, March 15th, 2024.
Central Disorders of Hypersomnolence (CDH) Consumer Forum.
I am proud to announce that I was recently invited by Michelle Chadwick from Hypersomnolence Australia to become a member of the CDH Consumer Forum. I now have the opportunity to connect with consumers and other consumer advocates, to collaborate on initiatives that will benefit others within the Australian Narcolepsy communities. Health consumers have beenContinueContinue reading “Central Disorders of Hypersomnolence (CDH) Consumer Forum.”
