Episode seven of the Waking Up Tired – Narcolepsy Symptoms Explained podcast is about the one symptom that differs between narcolepsy type one and two, cataplexy. Narcolepsy Type 1 is defined by both excessive daytime sleepiness and cataplexy. Narcolepsy Type 2 is characterised by excessive daytime sleepiness but without cataplexy. Because cataplexy varies so muchContinueContinue reading “When Laughter Knocks You Down Cataplexy Explained”
Category Archives: Don’t give up
Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy
“I was awake, but I couldn’t move. I could hear someone say my name—but no one was there.” https://open.spotify.com/episode/2578xNvXmyYjuiu0SdEQfH?si=7Cf34uo9TZW3R9t87O3WFg That was Erin’s first experience of sleep paralysis. She was 16, confused, and terrified. What she didn’t know then was that this moment would mark the beginning of her journey toward a diagnosis of Type 1ContinueContinue reading “Frozen Awake: Erin’s Story of Sleep Paralysis, Hypnagogic Hallucinations and Narcolepsy”
Disrupted Sleep, Disrupted Life – Disrupted Night-time Sleep
Waking Up Tired – Narcolepsy Symptoms Explained Podcast Episode Four When I was first diagnosed with narcolepsy, I wasn’t handed a guidebook. No roadmap, no real explanation—just a steep learning curve I’m still navigating. That’s why conversations like the one in Episode 4 of Waking Up Tired matter so deeply. In this episode, you willContinueContinue reading “Disrupted Sleep, Disrupted Life – Disrupted Night-time Sleep”
The Underground Railroad
Please help me to raise awareness on World Narcolepsy Day, September 22nd, by streaming this song on your preferred streaming service, and or purchase this single, request it to be played on the radio.
Today is World Narcolepsy Day
The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinueContinue reading “Today is World Narcolepsy Day”
Don’t Give Up
It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but itContinueContinue reading “Don’t Give Up”
Grief is Exhausting
Today marks the 13th year of the unexpected passing of my eldest child Daniel. Daniel was a perfectly healthy 16 year old teenage boy; there was no reason for me to suspect that the 10th of December 2007 would be the last time that I would see him alive. On this day 13 years agoContinueContinue reading “Grief is Exhausting”
