The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too! If a teacher was aware of what to look for, they may be able to help a student to get diagnosedContinueContinue reading “Today is World Narcolepsy Day”
Category Archives: bereaved parents
Fatigue and the Festive Season
The festive season is exhausting for people as it is, so imagine how difficult it is for someone who has undiagnosed and therefore un-treated narcolepsy, a full-time job and 4 children! I always hosted Christmas lunch and to be honest I found having the family over for Christmas was a lot easier than having toContinueContinue reading “Fatigue and the Festive Season”
Grief is Exhausting
Today marks the 13th year of the unexpected passing of my eldest child Daniel. Daniel was a perfectly healthy 16 year old teenage boy; there was no reason for me to suspect that the 10th of December 2007 would be the last time that I would see him alive. On this day 13 years agoContinueContinue reading “Grief is Exhausting”
