The difficulty in being diagnosed with this rare disease is why so many people go undiagnosed for many year’s. I believe that not only should doctor’s receive training in sleep disorders, teacher’s should too!
If a teacher was aware of what to look for, they may be able to help a student to get diagnosed sooner, after all, children spend more of their awake time at school than they do at home with their parents!
My name is Di Spillane and I am Living With Narcolepsy (N1) in Australia.
Despite having lived with this disorder since childhood, I wasn't diagnosed with narcolepsy + cataplexy (N1) until late in life at the age of 49.
Every person has their own personal journey, this website is where I will share my story about living with narcolepsy & cataplexy, and my long journey to receiving a diagnosis.
I will share information and tips for managing day to day life in an effort to help others who live with narcolepsy, help those who suspect that they might have a sleep disorder by providing information about my experiences, and help the narcolepsy community by advocating, educating, and raising public awareness of this debilitating rare sleep disorder.
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