Don’t Give Up

It saddens me to read younger narcoleptics posts in social media at times as I find that many are questioning their future as though having this chronic disorder is some kind of death sentence. Yes receiving an education is going to be a battle, I slept through most of my high school years, but itContinue reading “Don’t Give Up”

The Red Herring Story

As mentioned in a previous blog “The Arrival of the Red Herring”, I was given an appointment at the Lyell McEwin hospital to see a neurologist. The initial appointment was daunting as my head was still trying to process this potential MS diagnosis, and to be perfectly honest I was really scared. There are, asContinue reading “The Red Herring Story”

The Importance of Sleep

If you think that cutting back on sleep won’t affect you then think again. Fatigue played a considerable role during the 70s and 80s in some of the worst preventable disasters the world has ever seen. Investigations revealed that sleep deprivation was a significant factor in the 1979 nuclear accident at Three Mile Island, asContinue reading “The Importance of Sleep”

The Phone Battery Theory

How do you explain what it is like to have Narcolepsy? This is a regular topic of conversation within social media narcolepsy forums; and one that never really seems to be answered. The fact is that it is almost impossible for anyone who doesn’t have it to be able to understand the battle. I haveContinue reading “The Phone Battery Theory”

The Arrival of the Red Herring

During the ongoing fatigue investigation I was also seeing a psychiatrist as I had been diagnosed with depression in 1998 and the fatigue that I was experiencing was thought to be (by the specialists who my work had sent me to see) as a result of my depressed state. If you had lived with beingContinue reading “The Arrival of the Red Herring”

Increasingly Forgetful

When you have spent the majority of your life waking up tired you don’t know any different, in fact I honestly thought that everyone must wake up feeling the same way, boy was I ever wrong! I didn’t even begin to suspect that something wasn’t right until around 2012 when I began to have troubleContinue reading “Increasingly Forgetful”

Raising Awareness Interview

On the lead up to this years World Narcolepsy Day, I was invited to be interviewed to discuss narcolepsy by Jo from my local community radio station PBAFM. Jo has a weekly program called The Kitchen Table, and every week she and her co host Pete chat with a variety of people about subjects thatContinue reading “Raising Awareness Interview”